Our tough little Taylor was born with an unexpected heart defect. At less than 24 hours old, our baby was airlifted via helicopter to a hospital that could perform a lifesaving procedure. We were able to bring her home two weeks later under the assumption that she would need to have open-heart surgery within a couple months. Taylor is now five years old and miraculously has not needed an operation yet. We call her our little miracle. She brings us so much joy and every day is such a blessing! We pray for continued advancement in congenital heart defect research, so our little princess can have a fairy tale ending.
20 weeks into the pregnancy it was discovered that Tyler would be born with an underdeveloped right ventricle and diagnosed with hypoplastic right ventricle with pulmonary atresia. The palliative procedure to improve Tyler’s long-term health is called the Fontan procedure and consists of three separate open-heart surgeries. Within nine days of Tyler’s birth, he underwent his first surgery. His second successful open-heart surgery took place when he was six months old and his third occurred when he was three years old.
Tyler is a happy, expressive and outgoing little boy who loves school and playing with his twin brother Charlie. He owes his good health to a superb medical team that is advancing relatively new techniques in the treatment of congenital heart defects. Thanks to research funded by The Children’s Heart Foundation, Tyler and thousands of others with similar conditions are able to enjoy healthy and happy lives.
Noah was diagnosed with Tricuspid Atresia and a Hypoplastic Right Ventricle at our 20 week ultrasound. In his first 4 years, Noah endured three open-heart surgeries, in order to circumvent the right side of his heart, and a couple of other surgeries to treat a severe bacterial infection.
Because of ongoing research funded by organizations such as The Children’s Heart Foundation, Noah is no different from the typical 7-year-old boy. In fact, unless you saw the scar on his chest, you wouldn’t even know that he has a heart defect. He just completed 1st grade, loves playing sports, and is an amazing big brother!